• Understanding Duchenne
• Caring
  for Him
• Advancing
  Research
• Leading
  the Way
• Ending
  Duchenne
• Uniting the Community

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    Photo Campaign
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Advocacy Matters

Welcome to Parent Project Muscular Dystrophy’s (PPMD’s) Advocacy Center. We hope that you will take a moment to read about the history of PPMD’s advocacy efforts, our past successes, and what actions are currently needed.

One of our favorite quotes comes from Margaret Mead who said, “Never believe that a few caring people can’t change the world. For, indeed that’s all who ever have.” PPMD’s advocacy efforts have proven this to be true.

By advocating for PPMD you can directly help to strengthen the voice of those affected by Duchenne, ensure parity in Duchenne funding, work towards increasing Duchenne research funding, and help make a difference for all families affected by Duchenne.

Since our organized advocacy efforts began in 2000, your voice and your actions have helped to leverage over $200 million into muscular dystrophy research, with over $45 million of that for Duchenne.

Please take a moment to read further and to get involved in our advocacy agenda. Please help us end Duchenne.

Learn more about PPMD’s Advocacy History
Original MD Care Act
Find your Representatives plus House and Senate Report Cards
FAQ's