• Understanding Duchenne
• Caring
  for Him
• Advancing
  Research
• Leading
  the Way
• Ending
  Duchenne
• Uniting the Community

• Elements of Care
  • Seeking Treatment
  • Managing Daily Life
  • Family Support
  • School Programming
• Physical Issues
  • Physical Therapy
  • Dental Issues
  • Steroids + Supplements
  • Braces + Wheelchairs
  • Respiratory Challenges
  • Osteoporosis
  • Surgery + Anesthesia
• Emotional
  Issues
  • Connecting With Him
  • Social Isolation
  • Daily Life
  • Handling His Questions
• Behavioral
  Issues
  • Autism Spectrum
  • Obsessive-Compulsive Disorder
• Educational
  Issues
  • Education Matters
  • Individualized Education Program
  • Inclusion
• Assistance
  • Important Numbers
  • Helpful Links
  • Support Materials

A Duchenne diagnosis in your family makes daily life more challenging. Making adjustments and learning about issues such as education, diet, mobility, and exercise will help you maintain, as much as possible, a happy and healthy family life. In this section you will find vital information designed to assist you in caring for your child.

Parent Project Muscular Dystrophy has been a leading advocate for the establishment of Standards of Care for Duchenne and Becker Muscular Dystrophy. The US Centers for Disease Control and Prevention selected 84 clinicians to develop care recommendations using the RAND Corporation–University of California Los Angeles Appropriateness Method. The DMD Care Considerations Working Group evaluated assessments and interventions used in the management of diagnostics, gastroenterology and nutrition, rehabilitation, and neuromuscular, psychosocial, cardiovascular, respiratory, orthopaedic, and surgical aspects of DMD. These recommendations, presented in two parts, are intended for the wide range of practitioners who care for individuals with DMD. They provide a framework for recognising the multisystem primary manifestations and secondary complications of DMD and for providing coordinated multidisciplinary care. In part 1 of this Review, we describe the methods used to generate the recommendations, and the overall perspective on care, pharmacological treatment, and psychosocial management.

Click here to download the Care Considerations
Click here to download the family friendly version

Learn More: Visit PPMD's Duchenne Connect website.

TREAT-NMD Care Recommendations
Seeking Treatment
Managing Daily Life
Family Support
School Programming