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Understand Duchenne

• About Duchenne
• About Dystrophin and Utrophin
• Signs of Duchenne
• Testing for Duchenne
• Who Gets Duchenne
• What Causes Duchenne
• How Duchenne is Identified
• How Duchenne Progresses
• New Diagnosis
• First Steps
• What You Can Do
• Parenting Children with Duchenne
• Finding Support
• Stages of Duchenne
• Early Phase (diagnosis to age 7)
• Transitional Phase (ages 6 to 9)
• Loss of Ambulation (ages 10 to 14)
• Adult Stage (ages 15+)
• For Family Members
• Parents
• Brothers and Sisters
• Grandparents
• Relatives and Friends
• For Professionals
• Teachers
• Physical Therapists
• Physicians
• Researchers
• Teach Others About Duchenne

Care for Him

• Elements of Care
• Seeking Treatment
• Care Considerations
• Managing Daily Life
• Family Support
• School Programming
• Physical Issues
• Dental Issues
• Cardiac (Heart) Concerns & Care
• Respiratory (Breathing) Challenges
  
• Osteoporosis and Bone Health
  
• Physical Therapy
  
• Braces and Wheelchairs
  
• Steroids and Supplements
  
• Surgery and Anesthesia
• Emotional Issues
• Coping with Duchnne
• Depression & Anxiety
• Connecting with Him
• Social Isolation
• Daily Life
• Handling his Questions
• Behavioral Issues
• Behavioral Issues by Stages
  
• Opposition & Aggression
  
• Social Interactions
  
• Austism Spectrum Disorders
• Obsessive-Compulsive Disorder
• Sensory Processing Disorder
  
• ADHD
  
• Cognitive Issues
• Cognitive Issues by Stages
• Developmental Delay & Intellectual Ability (IQ)
  
• Language
  
• Attention, Listening, & Memory
  
• Executive Functioning
  
• Learning Disabilities
  
• Educational Issues
• Education Matters Guide
  
• Individualized Education Program (IEP)
• Inclusion
• Recommended Assessments
  
• Resources & Support
• Support Materials
• Important Numbers
• Helpful Links

Advance Research

• Research
• Research Strategies
• Therapeutic Pipeline
  
• Drug Development Process
  
• What We Are Funding
• Funding Portfolio
  
• Programs & Priorities
  
• Review Committees
  
• Clinical Trials
• Purpose
• Enrollment
• Clinical Trial Process
• Endpoints
• How We Know When Something Works
• For Grantees
• End Duchenne Grant Award Program (GAP)
  
• GIFTED: Drug Development Grant
  
• Investigator Award
  
• Bridge/Pilot Funds
  
• For Industry & Investors
• Business Strategy
• Value Proposition
• Duchenne Report Card

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• Action Alert
• Our Advocacy History
• Advocacy Timeline
  
• MD-CARE Act
• Advocacy Conference
• Advocacy 101
• Find Your Representatives

Connect

• News
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About Us

• Mission
• Financials
• History
• Staff & Board
• Staff
• Board
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• Press Releases
• PPMD in the News
  
• President's Bio
• Facts
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• Contact Us

• Recently Diagnosed
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