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All mothers and fathers want to protect their children, but a Duchenne diagnosis can leave you feeling helpless and isolated. The most important thing for you to remember when facing the challenges of Duchenne is that you are not alone.
Your family, your friends, your physicians, and your PPMD family are always available to help you navigate through what can seem like an overwhelming journey — a journey you never planned or wanted to take.
The passage above is an excerpt from Mastering Balance Beams: Parenting Children with Muscular Dystrophy, an incredibly helpful essay written by Joan Fleitas Ed.D., R.N., a mother who deals with her own parenting challenges, and who helps families face the issues you and your family are facing now.
Keep in Mind
PPMD has created a networking site to bring the community together like never before. Please visit our Connect page to connect with other families who are looking to find comfort and support among families who share this unique experience.
You don’t have to feel alone.
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