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F.A.C.E.S.

FACES is an acronym that stands for Families Advocating, Connecting, Educating, and Supporting. Duchenne FACES is the official parent led outreach initiative of Parent Project Muscular Dystrophy (PPMD).

FACES outreach locations offers families affected by Duchenne and Becker a regional PPMD point of contact, as well as, serve as a volunteer extension of the PPMD central office.

FACES Goals

  • Family Mentoring: To help local and regional families better understand the diagnosis of Duchenne or Becker muscular dystrophy.
  • Grassroots Outreach: To support national awareness and advocacy campaigns.
  • Fundraising: To support PPMD research, advocacy, care, and education programs. 

FACES launched with it's first location in New Jersey at the end of 2008. Since then, we've expanded to more states and are gearing up to add additional groups. A Volunteer Coordinator(s) is chosen to head up each FACES location, and groups are required to hold meetings every other month.

Up and Running FACES Groups

Learn more

  • Contact Ryan Fischer, the liaison between all FACES locations and the PPMD office, at Ryan@ParentProjectMD.org or 800-714-5437.

 

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