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2010 Connect Conference Presentations

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  • Chairman's Report MP3
    Presented by Kimberly Galberaith
  • A Sibling's View MP3
    Moderated by Jill Castle

Looking at Current and Upcoming Clinical Trials

  • Summary of Saturday Morning Clinical Trials Updates - Report (PDF)
    Sharon Hesterlee, Ph.D., Sr. Director Research and Advocacy
  • Lisinopril vs. Losartan PDF
    Presented by Hugh Allen
  • FOR-DMD (NIH Steroid Trial) PDF
    Presented by Kate Bushby
  • Follistatin Gene Therapy PDF
    Presented by Jerry Mendell
  • Sildenafil PDF
    Presented by Kathryn Wagner

Duchenne 101

  • Basics of Duchenne PDF | MP3
    Presented by Annameike Aartisma-Rus
  • Genetic Testing and Registries PDF | MP3
    Presented by Vanessa Rangel-Miller

Building Your Foundation - Putting the Pieces in Place

  • Understanding Care PDF | MP3
    Presented by Brenda Wong
  • Physical Therapy PDF | MP3
    Presented by Helen Posselt
  • School Issues: Putting Your IEP in Place PDF | MP3
    Presented by Kelli May Miller
  • Success Factors of Families PDF | MP3
    Presented by David Schonfeld
  • Understanding and Filtering Information PDF | MP3
    Presented by Tom Rando
  • Understanding the Process of Clinical Trials PDF | MP3
    Presented by Bruce Wentworth

Duchenne Research Strategies

  • Overview of Duchenne Research Strategies PDF | MP3
    Presented by Sharon Hesterlee

Advocacy: Impacting Duchenne Research and Care

  • PPMD's Advocacy Initiatives Update PDF | MP3
    Presented by John Keast
  • End Duchenne Grant Award Program (GAP) PDF | MP3
    Presented by Sharon Hesterlee
  • Progress Report: Wellstone Centers PDF | MP3
    Presented by Glen Nuckolls
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