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2017 Annual Connect Conference

2017 Connect Conference

The 2017 PPMD Connect Conference marks the 23rd time families, physicians, researchers, caregivers, industry partners, and those living with Dauchenne have gathered to discuss all topics Duchenne.

This conference is like no other. Here, the key is community. All the pieces of this incredible community come together to learn, to listen, and to look forward at driving change. Every single voice is important, and every moment is rich. Now is the time for us to come together as a community and seize this moment.

The field is ripe with opportunity and at the PPMD Connect Conference partnerships are built, questions are asked and answered, and friendships are forged.

The only thing missing is YOU.

Register as a Family Member

Register as a Professional

Details

  • When: Thursday, June 29 - Sunday, July 2, 2017
  • Where: Chicago, IL at the Chicago Marriott Downtown
    • Room Rate: $185 /night 
    • Room Reservation Deadline: June 6, 2017
    • See "Room Reservations" section at bottom of page for more info
  • Early Registration Deadline: April 15
  • General Registration Deadline: May 15
  • Late/Final Registration Deadline: June 23

Conference Registration

Conference Registration

Families

Because YOU are our priority, and bringing US together is essential, PPMD is pleased to offer reduced registration fees for our 2017 Connect Conference. Thanks to the generosity of our donors and sponsors, we have been able to reduce the registration fee by approximately 50% from last year!  

Guest Type Early
March 15
- April 15
General
April 16
- May 15
Late
May 16
- June 23
General Per Person
(Families, Patients, Family Foundations)
$150            $200            $250           
Newly Diagnosed
PPMD is offering a scholarship program to waive registration fees for families who have been diagnosed after January 2016.** Please click here to apply for this scholarship.

 

Register as a Family Member

**PPMD can offer Newly Diagnosed conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations. Kids Track and End Duchenne .1K are not included in this sponsorship.

 

Professionals

Guest Type Early
March 15
- April 15
General
April 16
- May 15
Late
May 16
- June 23
Industry Representatives - Sponsoring 
(Sponsoring Industry Representatives)
$500 $550 $600
Industry Representatives - Non-Sponsoring
(Non-Sponsoring Industry Representatives)
$625 $675 $725
Academic Health Care Professionals
(MD, PhD, PT, NP, etc - Not employed by Pharma Industry)
$325 $350 $425

 

Register as a Professional

 

What does your Connect Conference Registration Cover? 

Registration fees help to offset, but do not cover the full cost of the Connect Conference. PPMD recognizes, however, that bringing the conference and the wealth of information it provides is an invaluable part of our leadership in the Duchenne community.

Included with your registration fee is:

  • Access to all General and Breakout sessions, the Vendor Resource Fair and Scientific Poster sessions.
  • Lunch and a welcome reception on Thursday, breakfast and lunch on Friday and breakfast, lunch and dinner on Saturday, and breakfast on Sunday morning.
  • Upon check in you will also receive conference materials and information including a printed conference guide that compiles the latest information on all current Duchenne clinical trials, and other valuable Duchenne information.  

Snapshot of Conference Topics & Schedule

Connect Conference

This year in Chicago, you will hear current and critical information on:

  • Managing care at every age of Duchenne – what aspects of care you need to know now and in the future.
  • Understanding Duchenne mutations and disease course.
  • Duchenne clinical trials, both ongoing and upcoming, the advancements and the timelines.
  • Accessing therapies and the future of treatments
  • Impacting research, trials, and treatment through advocacy and collaboration.
  • Encouraging independence and social integration.
  • Parent to parent real life information – managing your family.
  • Living with Duchenne – those living with Duchenne spend time with and learn from our PPMD Adult Advisory Committee about everyday life. 
Wed 6/28 (PRE-
CONFERENCE)
Thurs 6/29
 
Fri 6/30
 
Sat 7/1
 
Sun 7/2
 
11:00 AM
Registration opens 

12:00 PM -
5:00 PM
Duchenne Research Symposium Meeting (private) 

6:00 PM -
9:00 PM
Newly Diagnosed Families – Drinks and Download (private)

6:00 PM -

9:00 PM
Teens and Adults living with Duchenne social.
(Open to all registered conference attendees living with Duchenne/Becker ages 15 & up. Closed to other attendees – including parents)
7:30 AM
Registration opens 

8:30 AM -
12:00 PM
Newly Diagnosed program meeting – Understanding the Diagnosis of Duchenne (open to all conference attendees)

8:30 AM - 
12:00 PM
Teens and Adults living with Duchenne meeting 
(Open to all registered conference attendees)

9:00 AM -
12:00 PM
Duchenne Research Symposium (private)

12:00 PM - 
1:00 PM

Lunch

1:00 PM -
6:00 PM
Connect Conference Begins

3:15 PM -
6:00 PM
Kids Track

6:15 PM -
8:30 PM
Welcome Reception; Vendor Fair and Poster Session opens 
7:30 AM
Registration Opens

8:00 AM
End Duchenne .1K™

8:15 AM -
9:15 PM
Breakfast 

9:15 AM -
12:30 PM
General Sessions

9:30 AM -
12:30 PM
Kids Track

12:30 PM -
2:00 PM
Lunch; Vendor Fair and Poster Session Continue

2:00 PM -
6:00 PM
General Sessions

6:30 PM -
9:00 PM
PPMD's Duchenne Drug Development Roundtable Meeting (private)
8:00 AM
Breakfast

8:30 AM
General Sessions 

11:00 AM -
1:00 PM
Wellness Workshops (PT, Sibilings & Family, and a private Teens and Adults meeting – no parents or PCA's)

1:00 PM -
2:15 PM

Lunch 

2:30 PM -
4:30  PM
Care Breakout Sessions
 
5:00 PM -
6:00 PM
PPMD Adult Advisory Committee Presentation

7:00 PM
Saturday Night Celebration Dinner: Connect-Con
(A Costume [optional] Celebration Dance Party Extravaganza see details below!)
9:00 AM
Robotics 

10:30 AM
Parent to Parent: Duchenne life hacks, resources, and solutions

12:00 PM
Conference concludes

 

Saturday Night Celebration Dinner: Connect-Con!

Celebrating the Superheroes of our Duchenne Community

Connect Conference

Join us on Saturday evening for a new twist on our Connect Celebration Dinner a costume (optional) celebration dance party extravaganza, celebrating the superheroes of our Duchenne community!

 

Add-On Opportunities

End Duchenne .1K™ 

 End Duchenne .1K

On Friday morning, PPMD will once again host the End Duchenne .1K™.  Join us for this fun and zany race as parents, families, kids of all ages, scientists and researchers, industry sponsors, and ANYONE and EVERYONE take to the streets and together tackle .1K (about the length of a football field!). Your registration includes a race shirt, bib, swag bag, and all the fun of racing.  You won’t want to miss this fun and exciting event.  It is a great way to start the day! 

Registration is $15 per adult and $8 per child (kids under 5 are free).

 

Type Early
March 15
- April 15
General
April 16
- May 15
Late
May 16
- June 23
End Duchenne .1K - Adults
includes a race t-shirt, bib, & swag bag
$15 $15 $20
End Duchenne .1K - Kids 5 yrs & up
includes a race t-shirt & bib
$8 $8 $10
End Duchenne .1K™ - Kids under 5 yrs
Free           Free            Free          



Kids Track

Kids Track

One of our most exciting and fast-growing programs at the Connect Conference is our Kids Track! This year, we will be expanding our Kids Track to give those attending more creative outlets to express themselves.

This year, the program will include:

  • A two hour session Thursday, June 29th
  • A three hour session and lunch the morning of Friday, June 30th
  • A three hour session the morning of Saturday, July 1st

During these sessions there will be entertainment, special group games, crafts and activities (broken into 3 age groups; minimum age is 5 or kindergarten), and loads of interactive fun.

Kids Track registration also includes a free t-shirt, lunch on Friday, and dinner Saturday night.

NOTE: Minimum age is 5 or kindergarten. 

Type Early
March 15
- April 15
General
April 16
- May 15
Late
May 16
- June 23
Kids Track
(includes a t-shirt)
Minimum age is 5 or Kindergarten
$55           $60            $65          



Newly Diagnosed Program

2015 Connect Conference

This year, PPMD will again be offering an amazing support program for newly diagnosed Duchenne families to attend the Connect Conference. Through generous donations and sponsorships, PPMD will waive registration fees for families who have been diagnosed after January 2016.**

If your child has been diagnosed with Duchenne/Becker after January 2016 and you have never attended a PPMD Connect Conference and would like to attend the conference to gain a better understanding of Duchenne care and research, and to meet other families living with this diagnosis, please click here to apply for this scholarship.

(**PPMD can offer conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations. Kids Track and End Duchenne .1K are not included in this sponsorship.)

 

Room Reservations

2017 Connect Conference - Chicago, IL

To reserve a room at the Chicago Marriott Downtown at the Parent Project Muscular Dystrophy group rate, please make your reservation by June 6, 2017.

  • Make Your Room Reservation:
    • Online
    • Toll Free: 1-877-303-0104
    • If calling, make sure to identify yourself as part of the 'Parent Project Muscular Dystrophy Connect Conference'
  • Room Rate: $185 /night
  • Room Reservation Deadline: June 6, 2017

FAQs

  • Can we bring our children to PPMD’s Annual Conference? 
  • Does PPMD provide childcare?
  • Does PPMD ever waive registration fees?

Past Conference Presentations

Corporate Sponsorship Opportunities

Interested in sponsoring the Connect Conference? Sponsorship opportunities are still available. Please visit our Sponsor Programs page for more details.

Resource Fair Opportunities

We are pleased to announce the return of the PPMD Resource Fair at this year’s Annual Connect Conference. We are working to help resource providers and the community connect about practical services, equipment, and more. Admission for attendees is included in conference registration. If you would like information about how to exhibit please visit ParentProjectMD.org/Resource.

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