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2017 Annual Connect Conference

2017 Connect Conference

The 2017 PPMD Connect Conference marks the 23rd time families, physicians, researchers, caregivers, industry partners, and those living with Duchenne have gathered to discuss all topics Duchenne.

This conference is like no other. Here, the key is community. All the pieces of this incredible community come together to learn, to listen, and to look forward at driving change. Every single voice is important, and every moment is rich. Now is the time for us to come together as a community and seize this moment.

The field is ripe with opportunity and at the PPMD Connect Conference partnerships are built, questions are asked and answered, and friendships are forged.

The only thing missing is YOU.

Register as a Family Member

Register as a Professional

Apply for Newly Diagnosed Scholarship

Details

  • When: Thursday, June 29 - Sunday, July 2, 2017
  • Where: Chicago, IL at the Chicago Marriott Downtown
  • Early Registration Deadline: April 15
  • General Registration Deadline: May 15
  • Late/Final Registration Deadline: June 23

Conference Registration Rates

Conference Registration

Families

Because YOU are our priority, and bringing US together is essential, PPMD is pleased to offer reduced registration fees for our 2017 Connect Conference. Thanks to the generosity of our donors and sponsors, we have been able to reduce the registration fee by approximately 50% from last year!  

Guest Type Early
March 15
- April 15
General
April 16
- May 15
Late
May 16
- June 23
General Per Person
(Families, Patients, Family Foundations)
$150            $200            $250           
Scholarships for Newly Diagnosed Families
PPMD is offering a scholarship program to waive registration fees for families who have been diagnosed after January 2016.** Please click here to apply for this scholarship.

 

Register as a Family Member

Apply for Newly Diagnosed Scholarship

**PPMD can offer Newly Diagnosed conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations. Kids Track and the Race to End Duchenne .1K are not included in this sponsorship.

 

Professionals

Guest Type Early
March 15
- April 15
General
April 16
- May 15
Late
May 16
- June 23
Industry Representatives - Sponsoring 
(Sponsoring Industry Representatives)
$500 $550 $600
Industry Representatives - Non-Sponsoring
(Non-Sponsoring Industry Representatives)
$625 $675 $725
Academic Health Care Professionals
(MD, PhD, PT, NP, etc - Not employed by Pharma Industry)
$325 $350 $425

 

Register as a Professional

 

What does your Connect Conference Registration Cover? 

Registration fees help to offset, but do not cover the full cost of the Connect Conference. PPMD recognizes, however, that bringing the conference and the wealth of information it provides is an invaluable part of our leadership in the Duchenne community.

Included with your registration fee is:

  • Access to all General and Breakout sessions, the Vendor Resource Fair and Scientific Poster sessions.
  • Lunch and a welcome reception on Thursday, breakfast and lunch on Friday and breakfast, lunch and dinner on Saturday, and breakfast on Sunday morning.
  • Upon check in you will also receive conference materials and information including a printed conference guide that compiles the latest information on all current Duchenne clinical trials, and other valuable Duchenne information.  

Agenda

We are so proud of the comprehensive agenda that we have put together, featuring more updates in research, care, and advocacy than ever before.

We have listened to your feedback and included topics that are the most important to your day-to-day life with Duchenne. Plus, we will offer educational and social activities for teens and adults living with Duchenne. We welcome the return of our ever-growing Kids Track, featuring more great experiences while parents attend the regular conference sessions. Add in our Race to End Duchenne .1K and a Connect Celebration, and you have an unforgettable experience that you will remember for a lifetime!

Check out this year’s agenda* and make sure you register you and your family today!

View Agenda

*Please note the agenda is a work in progress and with speakers & times subject to change.

 

Newly Diagnosed Program

2015 Connect Conference

This year, PPMD will again be offering a support program for newly diagnosed Duchenne families to attend the Connect Conference. Through generous donations and sponsorships, PPMD will waive registration fees for families who have been diagnosed after January 2016.**

If your child has been diagnosed with Duchenne/Becker after January 2016 and you have never attended a PPMD Connect Conference and would like to attend the conference to gain a better understanding of Duchenne care and research, and to meet other families living with this diagnosis, please click here to apply for this scholarship.

(**PPMD can offer conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations. Kids Track and the Race to End Duchenne .1K are not included in this sponsorship.)

 

Saturday Night Celebration Dinner: Connect-Con!

Celebrating the Superheroes of our Duchenne Community

Connect Conference

Join us on Saturday evening for a new twist on our Connect Celebration Dinner a costume (optional) celebration dance party extravaganza, celebrating the superheroes of our Duchenne community!

 

Add-On Opportunities

Race to End Duchenne .1K™ 

 End Duchenne .1K

On Friday morning, PPMD will once again host the Race to End Duchenne .1K™.  Join us for this fun and zany race as parents, families, kids of all ages, scientists and researchers, industry sponsors, and ANYONE and EVERYONE take to the streets and together tackle .1K (about the length of a football field!). Your registration includes a race shirt, bib, swag bag, and all the fun of racing.  You won’t want to miss this fun and exciting event.  It is a great way to start the day! 

Registration is $15 per adult and $8 per child (kids under 5 are free).

 

Type Early
March 15
- April 15
General
April 16
- May 15
Late
May 16
- June 23
Race to End Duchenne .1K - Adults
includes a race t-shirt, bib, & swag bag
$15 $15 $20
Race to End Duchenne .1K - Kids 5 yrs & up
includes a race t-shirt & bib
$8 $8 $10
Race to End Duchenne .1K™ - Kids under 5 yrs
Free           Free            Free          



Kids Track

Kids Track

One of our most exciting and fast-growing programs at the Connect Conference is our Kids Track! This year, we will be expanding our Kids Track to give those attending more creative outlets to express themselves.

This year, the program will include:

  • A two hour session Thursday, June 29th
  • A three hour session and lunch the morning of Friday, June 30th
  • A three hour session the morning of Saturday, July 1st

During these sessions there will be entertainment, special group games, crafts and activities (broken into 3 age groups; minimum age is 5 or kindergarten), and loads of interactive fun.

Kids Track registration also includes a free t-shirt, lunch on Friday, and dinner Saturday night.

NOTE: Minimum age is 5 or kindergarten. 

Type Early
March 15
- April 15
General
April 16
- May 15
Late
May 16
- June 23
Kids Track
(includes a t-shirt)
Minimum age is 5 or Kindergarten
$55           $60            $65          



Room Reservations

2017 Connect Conference - Chicago, IL

UPDATE: Unfortunately our room block at the Chicago Marriott Downtown is now full! Alternate properties that are approximately ½ mile from our host hotel would be Courtyard Chicago Downtown/River North and Renaissance Chicago Downtown HotelPlease note however, that PPMD does not have a reserved block or group rate at these properties.

 

FAQs

  • Can we bring our children to PPMD’s Annual Conference? 
  • Does PPMD provide childcare?
  • Does PPMD ever waive registration fees?

Past Conference Presentations

Corporate Sponsorship Opportunities

Interested in sponsoring the Connect Conference? Sponsorship opportunities are still available. Please visit our Sponsor Programs page for more details.

Resource Fair Opportunities

We are pleased to announce the return of the PPMD Resource Fair at this year’s Annual Connect Conference. We are working to help resource providers and the community connect about practical services, equipment, and more. Admission for attendees is included in conference registration. If you would like information about how to exhibit please visit ParentProjectMD.org/Resource.

Our Sponsors

Elite

PTC Therapeutics

Santhera

Sarepta

Gold

BMS

Mallinckrodt

Pfizer Bamboo - sponsorship

Solid Bio

Summit

Silver

BIO

Bronze

Capricor Therapeutics

Catabasis

Italfarmaco

Mitobridge

Nationwide Childrens

Orsini

Wave Lie Sciences

Our Exhibitors

Premiere

Kinova 

Standard

AGADA Biosciences Cascade Dafo

ReveraGen BioPharma Sherman Mobility Superstore

The Assistance Fund TRiNDS


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