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2016 Annual Connect Conference
Parent Project Muscular Dystrophy’s Annual Connect Conference is a unique convergence of industry partners, scientific leaders, medical providers, people living with Duchenne and their families. This exceptional meeting has grown to be recognized worldwide as the foremost Duchenne muscular dystrophy meeting.
This year, 2016, marks our 22nd Connect Conference. With the Duchenne landscape changing in so many ways just in the last six months alone, this year’s meeting is more important than ever and will help the community build partnerships, understand the nuances of Duchenne, open communication channels, and lay the groundwork for future collaborations.
PPMD's Annual Connect Conference shapes our understanding of the Duchenne landscape and brings us closer to the day we end Duchenne.
PPMD will be live streaming sessions most sessions from the conference Sunday, June 26 - Tuesday, June 28.
View the Agenda for session details. All sessions times are EDT. Our tentative streaming schedule is:
We are so proud of the comprehensive agenda that we have put together, featuring more updates in research, care, and advocacy than ever before.
We have listened to your feedback and included topics that are the most important to your day-to-day life with Duchenne. Plus, we will offer educational and social activities for teens and adults living with Duchenne. We welcome the return of our ever-growing Kids Track, featuring more great experiences while parents attend the regular conference sessions. Add in our inaugural End Duchenne .1K and a Connect Celebration, and you have an unforgettable experience that you will remember for a lifetime!
Check out this year’s agenda* and make sure you register you and your family today!
*Please note the agenda is a work in progress and with speakers & times subject to change.
Snapshot of Conference Topics/Schedule
We hope you will join us in Orlando, FL where you will hear current and critical information on:
Please note that this year's conference dates are different than years past. We will be starting our first General Session on Sunday, 6/26 and the conference will continue through until midday Wednesday, 6/29.
**PPMD can offer Newly Diagnosed conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations.
What does your Connect Conference Registration Cover?
Registration fees help to offset, but do not cover the full cost of the Connect Conference. PPMD recognizes, however, that bringing the conference and the wealth of information it provides is an invaluable part of our leadership in the Duchenne community.
Included with your registration fee is:
Newly Diagnosed Program
This year, PPMD will again be offering an amazing support program for newly diagnosed Duchenne families to attend the Connect Conference. Through generous donations and sponsorships, PPMD will waive registration fees for families who have been diagnosed after January 2015.**
If your child has been diagnosed with Duchenne/Becker after January 2015 and you have never attended a PPMD Connect Conference and would like to attend the conference to gain a better understanding of Duchenne care and research, and to meet other families living with this diagnosis, please click here to apply for this scholarship.
(**PPMD can offer conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations. Kids Track and End Duchenne .1K are not included in this sponsorship.)
Teens and Adults living with Duchenne
PPMD is excited to expand the teen and adult programming at our Annual Connect Conference! Starting with a poolside social on Saturday evening, June 25 and including a full morning of sessions on Sunday, June 26, teens and adults (14 years & older) with Duchenne will have an opportunity to really dive into the social, emotional, and financial topics that are most important to them. Make sure you (or your teen/adult child with Duchenne) are registered for this year’s Annual Connect Conference and take advantage of these great new sessions.
(see descriptions below)
(see descriptions below)
This year PPMD will host the inaugural Connect Conference End Duchenne .1K™. Join us for this fun and zany race as parents, families, kids of all ages, scientist and researchers, industry sponsors, and ANYONE and EVERYONE take to the streets of Orlando and together tackle .1K (about the length of a football field!). Your registration includes a race shirt, bib, swag bag and all the fun of racing. You won’t want to miss this fun and exciting event. A great way to start the day – raising awareness and having a great time doing it!
Registration is $15 per adult and $5 per child (kids under 5 are free).
One of our most exciting and fast-growing programs at the Connect Conference is our Kids Track! This year, we will be expanding our Kids Track to give those attending more creative outlets to express themselves.
This year, the program will include:
During these sessions there will be entertainment, special group games, crafts and activities (broken into 3 age groups; minimum age is 5 or kindergarten), and loads of interactive fun.
Kids Track registration also includes a free t-shirt, lunch on Monday, and dinner Tuesday night.
NOTE: Minimum age is 5 or kindergarten.
To reserve a room at the Renaissance Orlando at Sea World at the Parent Project Muscular Dystrophy group rate, please make your reservation by June 5, 2016.
Yes, you are welcome to bring your children to PPMD’s Annual Connect Conference. However, please remember and keep in mind that the conference presentations are serious topics and quite sensitive and session days are long. For this reason, please make sure to bring someone with you or make arrangements to have someone watch your children while you attend the conference sessions. Also, PPMD will be offering a Kids Track for portions of the day on Sunday, Monday, and Tuesday (View the "Kids Track" section of this page to learn more).
No. PPMD does not offer childcare at this meeting. However we will be offering a Kids Track for portions of the day on Sunday, Monday, and Tuesday (View the "Kids Track" section of this page to learn more).
Unfortunately, PPMD is not in the position to be able to waive any registration fees. As mentioned above, the registration fees only cover approximately 65% of what PPMD pays for each person for the conference. We suggest that you look into local community groups such as the Lion's Club or Rotary Club for financial assistance. Also sometimes, church groups or other service groups will help provide assistance. Through generous donations and sponsorships, PPMD offers a scholarship program for newly diagnosed Duchenne families (diagnosed after January 2015).
Past Conference Presentations
Corporate Sponsorship Opportunities
Interested in sponsoring the Connect Conference? Sponsorship opportunities are still available. Please visit our Sponsor Programs page for more details.
Resource Fair Opportunities
We are pleased to announce the return of the PPMD Resource Fair at this year’s Annual Connect Conference. We are working to help resource providers and the community connect about practical services, equipment, and more. Admission for attendees is included in conference registration. If you would like information about how to exhibit please visit ParentProjectMD.org/Resource.
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