Print Email  

20th Annual Connect Conference

Annual Connect Conference

This year marks PPMD's 20th Annual Connect Conference in Chicago, June 26-28, 2014. What started as a few dozen parents and a handful of experts gathered to discuss and learn all they could about Duchenne, has grown into a meeting where families, physicians, researchers, industry leaders, and experts of all kinds gather to speak face-to-face about Duchenne.

It is also your opportunity to come together with others on the Duchenne journey, sharing support, strength, and camaraderie. Building partnerships, understanding the nuances of Duchenne; these discussions open communication channels and lay the groundwork for future collaborations. The PPMD Annual Connect Conference helps shape our understanding of the Duchenne landscape and bring us closer to the day we end Duchenne.


PPMD will be live streaming sessions from our 20th Annual Connect Conference, June 26-28, 2014.

View the Agenda for session details. All sessions times are CDT. Our tentative streaming schedule is:

  • Thursday: 12:30 PM - 2:00 PM CDT
  • Friday: 8:00 AM - 12:00 PM, 1:10 PM - 6:30 PM CDT
  • Saturday: 8:00 AM - 12:40 PM, 2:00 PM - 6:30 PM CDT

Click here to access the live stream.


  • When: June 26 - 28, 2014
  • Where: Chicago, IL at the Chicago Marriott Downtown Magnificent Mile
  • Early Registration Deadline: April 10
  • General Registration Deadline: May 15
  • Late/Final Registration Deadline: June 20

Conference Registration

Fee Type Early
March 10
- April 10
April 11
- May 15
May 16
- June 20
General (families, patients, caregivers) $300            $325            $350           
Industry Representatives (sponsoring) $400 $425 $450
Industry Representatives (non-sponsoring) $500 $525 $550
Professionals (MD, PhD, PT, NP, Etc.) $300 $325 $350
Kids Track $65 $70 $75

Registration fee includes: Welcome Reception Thursday evening; breakfast on Friday and Saturday; lunch on Thursday, Friday, and Saturday; dinner Saturday evening; and all conference materials.

Kids Track will be on Thursday afternoon & Friday morning. This is a great time for all of the kids to gather, play games, do crafts, interact with each other, and form friendships. Kids Track will be divided into various age groups. Qualified adult supervision is provided, as is lunch.

Register Now

** We're sorry, the deadline for registering for this event online has passed. You can still register in person at the Conference.

Room Reservations

To reserve a room at the Chicago Marriott Downtown Magnificent Mile at the Parent Project Muscular Dystrophy group rate, please make your reservation by June 5, 2014.

  • Make Your Room Reservation:
    • Online
    • Toll Free: 1-877-303-0104
    • Local Phone: 1-866-596-7456
  • Room Rate: $189 /night
  • Room Reservation Deadline: June 5


Download the 20th Annual Connect Conference agenda (PDF)*:

Download the Agenda

*Agenda subject to change

What You Can Expect

Our Chicago Conference aims to cover the topics you find most important, including:

  • Managing care at every age of Duchenne what you need to know now and in the future
  • Understanding Duchenne mutations and disease course
  • Discussions on ways to measure the effects of potential therapies
  • Duchenne research in the preclinical stage where it is heading, what are next steps
  • Duchenne clinical trials advancements, timelines, and access
  • Advocacy work in the Duchenne space how this impacts research and treatments
  • Encouraging independence and life lessons
  • And, an expanded Kids Track!

PPMD’s Connect Conference prides itself on bringing together the most important thought leaders in the Duchenne space. But just as importantly, we hope you will find this conference as a chance to really connect with this passionate and supportive community a community few of us chose to be a part of, but none of us can live without.

We can’t wait to see you and your family in Chicago!

Register Now

**We're sorry, the deadline for registering for this event online has passed. You can still register in person at the Conference.


More Information

  • FAQs 
  • Corporate Sponsorship 

Past Conference Presentations


Thank You to Our Sponsors


pfizer-logo      rally for ryan

nationwide childrens catabasis masters new logo orsini

Facebook YouTube Twitter

Our family-centered approach is at the heart of everything we do. Learn more.