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Annual Connect Conference
Connecting passion, promise and people in the fight to end Duchenne.
What started almost two decades ago as a small group of parents gathering to discuss current Duchenne topics has evolved into the largest, most comprehensive international annual conference focused entirely on Duchenne muscular dystrophy: PPMD's Annual Connect Conference.
Each year nearly 500 families from around the world gather to learn the latest progress in the fight to end Duchenne. They also gather for support, strength, and camaraderie. Our Annual Connect Conference is an opportunity for families, physicians, researchers, and experts of all kinds to speak face-to-face about Duchenne. These discussions open communication channels, lay the groundwork for future collaborations, and shape our understanding of the Duchenne landscape.
2011 Connect Conference
When: July 7-10, 2011
Never before has the Duchenne landscape been so ripe with promise. At last count fifty-two clinical trials were listed for Duchenne. Now more than ever understanding the information that is being printed, circulated or even just talked about is critical.
The Parent Project Muscular Dystrophy Annual Connect Conference is the one event in the United States that provides a multi-day gathering where Top researchers, clinicians, Duchenne experts, families and friends meet to exchange ideas, meet to learn the latest information and meet to stay connected with a community that refuses to give up hope.
We have listened once again to what topics are important to you, and have designed the conference around these needs.
In addition to in depth conversation on Duchenne research strategies and progress being made, this year we will feature presentations from 15 different industry and academic leaders currently running clinical trials. We will also feature three panel discussions: Looking at Combined Therapies, How Decisions Are Made When Taking a Drug To Trial, Alternative Therapies, and of course our Expert Panel: Living with Duchenne.
Registration & Fees
The Registration Deadline is June 27, 2011.
**If you'd rather register via mail or fax, please download the offline registration form.
Baltimore offers many activities and sightseeing opportunities that shouldn’t be missed.
Rooms are available at the Baltimore Marriott Waterfront as a special group rate of $169 per night single or double occupancy. To receive the special rate, please make your reservation at https://resweb.passkey.com/go/PPMD or call 1-800-266-9432 and identify yourself as part of the Parent Project Muscular Dystrophy Connect Conference prior to Tuesday, June 14, 2011.
**When you make your online reservation, you will have to enter credit card information. However, you will not be charged until you check out of the hotel at the end of your stay.
Kids Track Fees:
This year, we invite you to join us on Thursday, July 7th for a special event at the National Aquarium in Baltimore. Rather than our usual Welcome Reception at the hotel, this year we have expanded the Welcome Reception and added a local element, the National Aquarium in Baltimore to the event. We invite you and your family to join us at the Aquarium for a little exploration, food and drinks. This is a great event for everyone to meet new friends and re-connect with old friends. It is also a wonderful venue where all presenters, attendees, kids, board and staff will unite.
If you are arriving at Baltimore Penn Station, Yellow Cabs, the best taxi service in town, can be found 24/7 right outside of the main entrance. The Charm City Circulator, a free bus service, also stops by Penn Station.
More information on transportation:
Q: Can we bring our children to PPMD’s Annual Conference?
A: Yes, you are welcome to bring your children to PPMD’s Annual Connect Conference. However, please remember and keep in mind that the conference presentations are serious topics and quite sensitive and session days are long. For this reason, please make sure to bring someone with you or make arrangements to have someone watch your children while you attend the conference sessions. Also, PPMD will be offering a Kids Track on Friday, July 8th, 2011. (View the "Kids Track" section of this page to learn more)
Q: Does PPMD provide childcare
Q: When does registration close?
Q: When does the conference start?
Q: Does PPMD ever waive registration fees?
Past Conference Presentations
There has never been so much momentum in the Duchenne community. Help us keep moving forward by donating to fund CRISPR/Cas9 gene‑editing technology. Every gift to PPMD is being doubled until we raise $250,000—but we have to reach this goal by 12/31!