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Annual Connect Conference

2011 Connect Conference

Connecting passion, promise and people in the fight to end Duchenne.

What started almost two decades ago as a small group of parents gathering to discuss current Duchenne topics has evolved into the largest, most comprehensive international annual conference focused entirely on Duchenne muscular dystrophy: PPMD's Annual Connect Conference.

Each year nearly 500 families from around the world gather to learn the latest progress in the fight to end Duchenne. They also gather for support, strength, and camaraderie. Our Annual Connect Conference is an opportunity for families, physicians, researchers, and experts of all kinds to speak face-to-face about Duchenne. These discussions open communication channels, lay the groundwork for future collaborations, and shape our understanding of the Duchenne landscape.

2011 Connect Conference

When: July 7-10, 2011
Where: Baltimore, Maryland at the Baltimore Marriott Waterfront
Early Bird Registration Deadline: June 10, 2011
Final Registration Deadline: June 27, 2011

Never before has the Duchenne landscape been so ripe with promise. At last count fifty-two clinical trials were listed for Duchenne. Now more than ever understanding the information that is being printed, circulated or even just talked about is critical.

The Parent Project Muscular Dystrophy Annual Connect Conference is the one event in the United States that provides a multi-day gathering where Top researchers, clinicians, Duchenne experts, families and friends meet to exchange ideas, meet to learn the latest information and meet to stay connected with a community that refuses to give up hope.


We have listened once again to what topics are important to you, and have designed the conference around these needs.

Download the Agenda

In addition to in depth conversation on Duchenne research strategies and progress being made, this year we will feature presentations from 15 different industry and academic leaders currently running clinical trials. We will also feature three panel discussions: Looking at Combined Therapies, How Decisions Are Made When Taking a Drug To Trial, Alternative Therapies, and of course our Expert Panel: Living with Duchenne.

Registration & Fees

  • Conference Fees:
    • Before June 1: $300/person
    • After June 1: $325/person 

  • Kid’s Track (see "More Information" below)
    • Before June 1: $45/child
    • After June 1: $65/child

  • Special Event at the National Aquarium in Baltimore (see "More Information" below)
    • $20/person

The Registration Deadline is June 27, 2011.


**If you'd rather register via mail or fax, please download the offline registration form.

More Information

  • Pre-Conference Meeting for Researchers, Medical Professionals, and Industry (July 6-7)
  • Hotel Information
  • Kids Track
  • Special Event at the National Aquarium in Baltimore
  • Travel Information
  • Things To Do in Baltimore
  • Corporate Sponsorship
  • FAQs 

Past Conference Presentations

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Our family-centered approach is at the heart of everything we do. Learn more.