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Annual Connect Conference & Meetings

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Annual Connect Conference

The largest, most comprehensive annual, international conference focused entirely on Duchenne.

Each year nearly 500 families from around the world gather at our Connect Conference to learn the latest progress in the fight to end Duchenne. They also gather for support, strength, and camaraderie.

This is your opportunity to gain direct access to the people fighting everyday for children like yours and perhaps, most importantly, it is your opportunity to meet and reunite with families on a similar journey as you. There is incredible power and strength in connecting.

Save the Date for the 2017 Connect Conference:

  • When: June 29, 2017 to July 2, 2017
  • Where: Chicago, IL

Click here to access presentations from the 2016 Connect Conference. 

Every Single One

Every Single [One] Tour

In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD is launching a multi-year community experience called the Every Single [One] Tour.

Combining each of the pillars that make up PPMD’s mission --  To End Duchenne -- the Every Single [One] Tour will bring updates on research, advocacy, and care to cities across the country. These meetings will not replace PPMD's Annual Connect Conference, but rather bring some of the most popular aspects of the Connect experience closer to home.

2016 Remaining Dates: 

Save the Date for 2017:

Upcoming Events

  • Los Angeles, CA – January 2017*
  • Seattle, WA – March 2017*
  • Iowa City, IA – April 2017*
  • Gainesville, FL – June 2017*
  • Boston, MA – October 2017*
  • Albuquerque, NM – November 2017*
  • West Virginia – City & Date TBD*

*More details for our 2017 events will be provided on our website as information becomes available.

Sponsorship Opportunities

Interested in sponsoring our Connect Conference and/or Every Single [One] Tour? Please visit our Sponsor Programs page for more details.

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Let's seize this moment.


There has never been so much momentum in the Duchenne community. Help us keep moving forward by donating to fund CRISPR/Cas9 gene‑editing technology. Every gift to PPMD is being doubled until we raise $250,000—but we have to reach this goal by 12/31!