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Annual Connect Conference & Meetings

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Annual Connect Conference

The largest, most comprehensive annual, international conference focused entirely on Duchenne.

Each year nearly 500 families from around the world gather at our Connect Conference to learn the latest progress in the fight to end Duchenne. They also gather for support, strength, and camaraderie.

This is your opportunity to gain direct access to the people fighting everyday for children like yours and perhaps, most importantly, it is your opportunity to meet and reunite with families on a similar journey as you. There is incredible power and strength in connecting.

Save the Date for the 2017 Connect Conference

  • When: June 29, 2017 to July 2, 2017
  • Where: Chicago, IL

Newly Diagnosed Program

Once again, PPMD will be offering an amazing support program for newly diagnosed Duchenne families to attend the annual conference. Through generous donations and sponsorships, PPMD will waive registration fees for families who have been diagnosed after January 2016. *

If your child has been diagnosed with Duchenne sometime after January 2016 and you have never attended a PPMD Connect Conference and would like to attend the conference to gain a better understanding of Duchenne care and research, and to meet other families living with this diagnosis, please click here to apply for this scholarship

* PPMD can offer conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations. Kids Track and End Duchenne .1K  are not included in this sponsorship.

Past Conference Presentations

Click here to access presentations from the 2016 Connect Conference. 

Every Single One

Every Single [One] Tour

In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the Every Single [One] Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the Every Single [One] Tour brings updates on research, advocacy, and care to cities across the country.

Combining forces with Certified Duchenne Care Centers, FACES coordinators, and DuchenneConnect, and with financial support from industry partners and resource providers, the PPMD team and a rotating roster of special guests will host a FREE day-long meeting packed with important information you need to know. Certain cities will also provide the opportunities for professionals to register for CEU-accredited contact hours.

Upcoming stops:

Upcoming Events

*More details for our 2017 events will be provided on our website as information becomes available.


Sponsorship Opportunities

Interested in sponsoring our Connect Conference and/or Every Single [One] Tour? Please visit our Sponsor Programs page for more details.

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