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Annual Connect Conference & Meetings

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Connecting passion, promise and people in the fight to end Duchenne.

An educational series presented by PPMD

Parent Project Muscular Dystrophy is extremely proud to present our educational series, the Connect Conference and Meetings.

We hope you will join us at these meetings in 2015. Each event is a unique experience, but all share the same goal: to end Duchenne.

Annual Connect Conference

The largest, most comprehensive annual, international conference focused entirely on Duchenne.

Each year nearly 500 families from around the world gather at our Connect Conference to learn the latest progress in the fight to end Duchenne. They also gather for support, strength, and camaraderie.

This is your opportunity to gain direct access to the people fighting everyday for children like yours and perhaps, most importantly, it is your opportunity to meet and reunite with families on a similar journey as you. There is incredible power and strength in connecting.

Save the Date for 2016

Apply for PPMD's Newly Diagnosed Scholarship Program

PPMD will again be offering a support program for newly diagnosed Duchenne families to attend the Connect Conference. Through generous donations and sponsorships, PPMD is offering a scholarship program to waive registration fees for families who have been diagnosed after January 2015.**

If your child has been diagnosed with Duchenne after January 2015 and you have never attended a PPMD Connect Conference and would like to attend the conference to gain a better understanding of Duchenne care and research, and to meet other families living with this diagnosis, please apply for this scholarship.

(**PPMD can offer conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations.)

Roundtable Series

PPMD’s Roundtable series is hosted by our FACES coordinators. Topics include research updates and the latest care concerns…in your own backyard. Upcoming Roundtables include:

Train the Trainers

PPMD is providing 2-day physical therapy workshops for patients, parents, and therapists in the following locations:

Information from each of these events will be shared with the community afterwards. So even if you don’t live in an area we are visiting or if resources make it difficult for you to travel, PPMD promises to share all important updates with you.

The History of Connect

The Annual Connect Conference started almost two decades ago as a small group of parents gathering to discuss current Duchenne topics and has evolved into the largest, most comprehensive annual, international conference focused entirely on Duchenne muscular dystrophy.

Our meetings are an opportunity for families, physicians, researchers, and experts of all kind, to speak face-to-face about Duchenne. These meetings open communication channels, lay the groundwork for future collaborations, and shape our understanding of the Duchenne landscape.

Past Conference Presentations

Sponsorship Opportunities

Interested in sponsoring our Connect Series? Please visit our Sponsor Programs page for more details.

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