Boys with Duchenne are living longer, better lives.

Although Duchenne is considered a disease of motion, most boys with Duchenne will die of heart failure ... because the heart is a muscle too.

Multiple interventions are being developed that can dramatically extend the heart funtion in these boys.

Your support is needed to allow these boys to become men.

Our Cardiac Initiative is dedicated to two boys who died too early of heart failure and the doctors who are pioneering the way forward.

    Mitchell Jones               Matthew Denger

mitchell jones date            matthew denger date

View a video on the Cardiac Initiative:



View a video on Mitchell and Matthew's story:



Time is Ticking:


This year Parent Project Muscular Dystrophy has committed an additional $1 Million for critical Duchenne research.

Cardiac research has received a significant amount of funding over the past several years. Below is a list of past cardiac grants PPMD has funded, as well as current and new initiatives we are supporting in Identifying New Cardiac Drugs and Repurposing Existing Drugs to Treat Cardiomyopathy categories.

SERCA2a PTC Thearapeutics $250,000
Tadalafil (Ciaalis) Dr. Ron Victor, Cedar Sinai Medical Center $750,000
SERCA2a Dr. Dongshen Duan, Univ. of Missouri $280,425
Epleronone Trial Dr. Kan Hor, Cincinnati Children’s Hospital $84,092
Protein Ineractions Dr. Federica Montanaro (2011) (2012) $102,500
Sildenafil and Prednisone Dr. Stan Froehner $132,322
Aldosterone inhibitors Dr. Jill Rafael-Fortney $50,000

 

 

 

 

 

 

 

 


For more information follow these links:

Mitchell's Journey View our Youtube channel

Mitchell's Journey Facebook Page Duchenne Videos

Mitchell Jones Collage
       

Cardiac Initiative Webpage  Pioneering Heart Surgery for Duchenne Patient

 

 

HELP US KEEP
HEARTS HEALTHY

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Progress: 44%
Progress: 44%
Raised: $ 88200     Goal: $ 200000

 

BENEFITING
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Parent Project Muscular Dystrophy

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