Consistency, support, love, and patience are things every child needs, and this is especially true for a child with Duchenne.
- When children ask questions about Duchenne, answer them as honestly as you can, in age-appropriate terms that will be easy to understand.
- Remember that your son is an individual, not just a diagnosis. Encourage others to see him this way also.
- Lay heavy emphasis on activities and hobbies that the child can do, and encourage him to discover and do things he likes. Children are very creative, and boys with Duchenne often find new and alternative ways to participate in activities that interest them.
- Treat your child the same as you would your other children, by providing love, support, and discipline.
- Encourage your son to maintain some degree of independence and try not to overprotect him.
Connect with other parents who understand what you're experiencing, or visit our Resources & Support section.