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Parent Project Muscular Dystrophy has been a leading advocate for the establishment of Standards of Care for Duchenne and Becker Muscular Dystrophy. One of the goals of standards of care is to ensure that everyone with Duchenne gets a similar baseline level of care. Some clinics will do more than is recommended, but no clinics should do less than what is recommended.
The US Centers for Disease Control and Prevention selected 84 clinicians to develop care recommendations using the RAND Corporation-University of California Los Angeles Appropriateness Method. The DMD Care Considerations Working Group evaluated assessments and interventions used in the management of diagnostics, gastroenterology and nutrition, rehabilitation, and neuromuscular, psychosocial, cardiovascular, respiratory, orthopaedic, and surgical aspects of Duchenne.
These recommendations, presented in two parts, are intended for the wide range of practitioners who care for individuals with Ducehnne. They provide a framework for identifying and managing the symptoms of Duchenne and for providing coordinated multidisciplinary care. Right now there are not separate recommendations for Becker muscular dystrophy.
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