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Going to School with Duchenne Muscular Dystrophy

Written by Lisa Littleton and Illustrated by Christina Kosatka
Children's Book for your son's class, teaching them about Duchenne

Preface by Author

Our sons Andrew and Reece were diagnosed with Duchenne (Doo-shen) Muscular Dystrophy in January 2005.  We had never even heard of DMD and now this condition was our reality.  Adjustments at home soon fell into place.  Leg braces, daily stretches, and doctor’s appointments suddenly became a part of our life.  Attending school presented a whole new set of frustrations and concerns.  How could I expect the boy’s classmates and teachers to understand the complexities of Duchenne?  Trying to find a book about Duchenne and going to school ended in frustration.   I found books on various other conditions about going to school but none about Duchenne.  So I felt led to create a book on the subject.

This way, when I go to talk to the boys’ classmates, I have a book to read that explains their condition in language children can understand.  Children tend to tease Andrew and Reece less often once they hear about their condition.  Children are kinder to each other if they have information about the condition. Going to School with Duchenne Muscular Dystrophy was created to be read aloud in the child’s classroom.  

About the Author

Lisa Littleton graduated from The University of Delaware with a degree in elementary education and earned her master's in early childhood education at the University of Alabama at Birmingham.  Her first book,  Going to School with Duchenne Muscular Dystrophy was written five years after both her sons were diagnosed with Duchenne.

Lisa resides in Cary, North Carolina where she lives with her husband Jim, two sons, and a miniature dachshund named Jigi. Her hobbies include reading, exercising and making beaded jewelry. Lisa is a first grade teacher. She is a member of the National Education Association for the Education of Young Children and an avid supporter of Parent Project Muscular Dystrophy.

How to use this Book

Download the word document below. We've highlight parts in red that you can edit with your own son's information.


Editable Going to School with Duchenne Muscular Dystrophy word doc (file size is 9MB, allow for a minute to download once you click the link)

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