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Help us Reauthorize the MD-CARE Act
How to Get Active in Advocacy
We need your voice.
2013 is shaping up to be an important year in Duchenne Advocacy. We are determined to educate representatives in every district and Senators in every state about why it is so important that they reauthorize the MD-CARE Act in 2013. Over the past 11 years, the MD-CARE Act has played a vital role in advancing research and improving the care for all those diagnosed with Duchenne. Since 2001, nearly $500 million dollars has been invested by the federal government in research, care considerations have been established and published, and outlook for all those affected by Duchenne is changing. As we enter into a new era in Duchenne's history, with clinical trials coming to fruition and the hope for a treatment for this generation, we MUST continue the momentum started by a small group of families in 2001 with the birth of the MD-CARE Act. We MUST reauthorize this bill.
The 50 State Challenge
Duchenne touches far too many people in this country. Our representatives need to know that Duchenne is important in THEIR district to THEIR constituent. Our Senators need to know that it matters in THEIR state. So it is our goal this year to have supporters identified for this effort for every one of the 535 offices in Congress.
We know that advocating and telling your story can seem intimidating, but we are here to make the journey as easy as possible. Below are ways you can get active. We ask you to invite your families, neighbors, care givers, friends - anyone who cares about you and your children.
Please don't hesitate to contact PPMD with any questions you have about advocating. We hope you will consider lending your voice to ours. No one can do everything, but everyone can do something!