The Parent Project Muscular Dystrophy (PPMD) Advocacy Conference, held in the first quarter of each year, is the only officially organized gathering on Capitol Hill for the Duchenne community. Each year, participation at the PPMD Advocacy Conference grows. Scheduled visits on Capitol Hill are arranged for all attendees, giving a face and a voice to PPMD’s advocacy agenda.
Please do not hesitate to contact our Director of Community Outreach & Advocacy, Ryan Fischer at Ryan@parentprojectmd.org or 800-714-5437 with any questions or if you are interested in attending our yearly advocacy conference.
2013 Advocacy Conference
- Reauthorizing the MD CARE Act
Parent Project Muscular Dystrophy will host its 12th Annual Advocacy Conference in Washington, D.C. on February 10,11th and 12th, 2013. We need the support of the entire community this winter as we go to Capitol Hill to make our voices heard. This is year is extremely important as we attemp to reauthorize the MD Care Act for the third time. Your voice is just as critical as anyone else's in the fight to end Duchenne. Whether a seasoned advocate or a family new to Duchenne, we want you to join us and tell your story to the most important policymakers in our country - people who will decide how much money our government will contribute to Duchenne research. Register NOW
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2011 One Voice Summit & Advocacy Conference: Summary