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Families and individuals living with Duchenne often feel a lot of hope about clinical trials, especially for a treatment that has the potential to improve function, prognosis, and quality of life. We are fortunate that now is a time where our hopes are increasing. But along with hope, families may experience an emotional rollercoaster that brings elation, anxiety, and frustration as we learn to navigate the clinical trial process.
Maintain hope—we have made so much progress!—but try to have realistic expectations of clinical trials. Keep a focus on living each day well, as we buy time for people with Duchenne.
This section provides you with basic information about the purpose of clinical treatment trials and why they are crucial for new treatment development. Study enrollment is explained, and an overview of the clinical trial process is provided. For more detailed information about clinical trials, including the risks and benefits of participation, we encourage you to visit the DuchenneConnect site.
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