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Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne muscular dystrophy.  We take a comprehensive approach in the fight against Duchenne—funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options. We continually share vital and up-to-date information about Duchenne to the world through the media. We pride ourselves on our ability to quickly and effectively connect journalists to experts on Duchenne, as well as an array of disability-related subjects. Only this comprehensive approach will lead to the day that 100% of those diagnosed can turn to a treatment that will end Duchenne.

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Will Nolan, Communications Director

Please contact Will if you would like to be added to the PPMD media contact list.

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Let's seize this moment.


There has never been so much momentum in the Duchenne community. Help us keep moving forward by donating to fund CRISPR/Cas9 gene‑editing technology. Every gift to PPMD is being doubled until we raise $250,000—but we have to reach this goal by 12/31!