I’m the mother of Tim, a 14-year-old with Duchenne, and I’m prouder than ever to be a part of Parent Project Muscular Dystrophy.
This year, we have watched our community’s passion drive research, advance clinical trials, and make our voice heard in Washington, D.C. And through those achievements, we’re making the impossible happen every day. We’re seeing our sons and daughters take more steps. We’re watching them grow up. I’m getting to watch Tim become the young man I always dreamed he would be.
With so many emerging strategies, with so many clinical trials underway or poised to begin, and with such momentum in this community, my family and I realized we cannot afford to sit back. We’ve decided to offer a $50,000 matching gift to fund vital research. Give now, and we’ll match your donation dollar for dollar.
This year, PPMD will be funding three projects totaling just over $300,000 and aimed at identifying biomarkers and genetic modifiers, which will help to unlock better and faster ways of advancing clinical trials. This work is important for people of all ages living with Duchenne.
We know we need to find easier and better ways to measure the effects of Duchenne. And we need unique, reliable, quantifiable, easily-measured biomarkers that correlate with disease progression to more effectively study and treat Duchenne and to develop effective health promoting interventions.
This biomarker project can help us do just that, giving us a better understanding of what genetic modifiers make each diagnosis of Duchenne different and utilizing technology like MRI data to validate clinical trials.
My son Tim is involved in a clinical trial, so I know firsthand how much these trials matter. That’s why my family is committing a matching gift to fund these projects, in hopes of making new breakthroughs possible.
Please consider joining me and my family today by making a gift to advance this invaluable research. Nothing is too large or too small in this race against time.
I want to thank you, on behalf of my son and all families affected by Duchenne, for your continued support of PPMD.
May the season bring you and your family much peace.
P.S. When you make an online donation today to support PPMD’s biomarker project, my family will match your gift dollar for dollar. Double your donation today!