PPMD's 2017 Every Single [One] Tour: Charleston, WV 

PPMD - End Duchenne

In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the Every Single [One] Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the Every Single [One] Tour brings updates on research, advocacy, and care to cities across the country.

FREE Meeting for the Duchenne Community

On Saturday, September 9th, the PPMD team and a roster of special guests will host a FREE day-long meeting at the Embassy Suites, downtown Charleston packed with important information families, professionals, and support networks need to know.

  • Date & Time: Saturday, September 9, 2017 (8 AM - 6 PM)
  • Location: The Charleston Boardroom at Embassy Suites, 300 Court Street, Charleston, WV 25301
  • Cost: FREE for Duchenne/Becker community – families, professionals, and support networks
  • Agenda: TBD 
  • Registration Deadline: September 1, 2017 or until capacity is reached

Kid's Room

There will be a supervised Kid’s Room with entertainment and crafts throughout the day. Please register your child for Kid’s Room if you plan to bring them with you!


  • The Embassy Suites Hotel has reserved a block of suites at a special rate of $129.00 per night plus tax.
  • To reserve a suite at this rate, please make your reservation by calling 1-800-EMBASSY or go online to www.embassysuitescharlestonwv.com
  • You must use the PPM name when making reservations in order to receive the discounted rate.   Online you will enter this 3-letter code in the group/convention code space.  Please do not ask for the Room Block.
  • Embassy Suites offers a complimentary shuttle to and from Yeager Airport.

We're sorry, the deadline for buying tickets for this event has passed.