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Live a good life, and in the end it is not the years in the life, but the life in the years...Abraham Lincoln.
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While most of us would agree with this quote, it is not necessarily your family motto. However, this is the family motto for the Hester's, our dear friends, who are dealing with the realization that their precious 5 year old son, Micah, has been diagnosed with Duchenne Muscular Dystrophy.
Team HAM...creating HOPE, raising AWARENESS, fundraising for a MIRACLE... will be participating in the Seattle Marathon to raise funds for this cause. Please support our goal to raise $50,000 with a donation by selecting the "Give Now" button on the left. Our efforts will help make a big difference!
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Micah Hester
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Why we are doing this?
Micah Hester has Duchenne Muscular Dystrophy, DMD, and is the reason we are fundraising for this cause. He will experience a loss in muscle function and independence as he struggles with this condition. DMD is the most common fatal genetic disorder diagnosis in young boys and will affect 1 out of 3,500 boys world wide. It knows no boundaries and crosses into all cultures and races. This condition primarily affects boys because the affected gene is found on the X chromosome.
Boys with DMD typically lose the ability to walk between ages 10-13, they lose upper body function in their teens, and sadly, most will lose the battle to DMD in their early 20's. Your support and donations will help to fund awareness for DMD, research for medications to improve the quality of life for patients, and hopefully someday, a cure! In fact, the leading researchers believe that with adequate funding, a cure could be as soon as two to three years away. It is a very exciting time to be part of supporting this cause.
Information about DMD was taken from the PPMD (Parent Project Muscular Dystrophy) website www.parentprojectmd.org
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Hester Family
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Join Team HAM...
Current members:
Kindra Amidon, Kaye Bickford, Michelle Breed, Debbie Brome, Kathy Brown, Ken Brown, Abby Bushley, Cynthia Buys, Jenny Buys, Ryan Buys, Patty Cabe, Tiersa Chaffin, Peggy Cooper, Sally Davey, Norm Golden, Michael Gore, Dave Haugen, Tracy Haugen, JoAnne Hawkins, Janelle Hester, Lance Hester, Monte Hester, Teddi Hester, Julie Jurlin, Danielle Lawson, Laura Learned, Erika Lowery, Michelle Mead, Mary Miller, Melissa Miller, Bill Montgomery, Wendy Moore, Heather Neil, James Neil, Sue Neil, Jocelyn Norris, Nicole Pasin, Tony Pasin, Mel Rodriguez, TJ Rodriguez, Rhonda Schwab, Karin Sheets, Sydney Sheets, Todd Sheets, Veronica Sheets, Jeanie Simmons, Jeff Sorenson, Heidi Stephens, Michael Stephens, Susan Wagner, Mark Zenobio, & Paula Zenobio
Please email us at HAMforDMD@comcast.net and run, run/walk combo, or walk Seattle Full or Half Marathon on November 30, 2008 for Duchenne Muscular Dystrophy.
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Team HAM's progress
Topics
So many of you were asking for the video that was shown about Micah and Addison (his buddy with DMD) that was shown at the registration meeting so here it is on Utube to show to everyone. Feel free to pass on the site to anyone and everyone you know :)
Janelle
http://www.youtube.com/watch?v=ZidwmprYroA
by Jennifer Buys on Mon, Jun 30, 2008 @ 7:02 PM
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the very first thing that I did was check out the "Kid's Dash". My first phone call was to Jenny to hear all about it...she was not home so I went to my email and....I had friends email me pictures and give us updates on it all. WOW, I wish so much we could have been there! Thank you so much to everyone for all of your efforts and participation. What a great event! We did however have an awesome and MUCH NEEDED vacation in DisneyWorld and on the Disney Cruise ( a must do for all with kids BTW). Thank you again from all of the Hester's--We love you all!!
Janelle, Lance, Brayden and Micah!
by Jennifer Buys on Mon, May 19, 2008 @ 3:08 PM
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Congratulations and Happy Mother's Day to Tiersa our grand raffle winner!
by Jennifer Buys on Sat, May 10, 2008 @ 1:48 AM
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As many of you know, we have been trying to get Micah into a trial study for his DMD and getting our hopes up. Recently we found out that he does not have the right type of genetic make up for this study. This was very depressing news for our family. So, now more then ever we need to get more money for research which is what this is all about. Thank you all so much for your continued prayers and support. We love you all and what you are doing for our family!
Lance, Janelle, Brayden and Micah
by Jennifer Buys on Sat, May 10, 2008 @ 12:55 AM
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A scrapbooking Fundraiser. June 28th at the Best Western Wesley Inn in Gig Harbor we will be holding a scrapbook retreat. This event will be co-sponsored with Toadilly Scrappin'. The event runs from 9:00am to 10:00 pm and there will be food, raffle, give aways, equipment to use, lunch, dinner and a 10% discount from Toadilly Scrappin' for this event. The cost is $40.00 with all proceeds going to PPMD. Hope to see you all there-it will be a great event!
Janelle
by Jennifer Buys on Fri, May 02, 2008 @ 4:57 PM
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Purdy Elementary had a take over of McDonalds tonight and as I was talking to one of my dear friends, her daughter came running up to her and said "mommy, mommy, I just saw Micah Hester...he is here" and she said to her daughter..."I know and this is his mommy" I never knew that Micah would become such a star in all of this. Boy, that warmed my heart. It was precious!
Janelle
by Jennifer Buys on Fri, May 02, 2008 @ 1:57 AM
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Please support our efforts to raise money for Duchenne muscular dystrophy by registering and participating in our upcoming races.
Kid's Dash for Micah's Miracle Saturday May 17th. The focus of this event is on fun and fundraising. Entries for this event are limited and we need to have all registration turned in by May 12th to make sure we have the proper insurance coverage. Money will be collected on race day, unless you register online. All participants are asked to get sponsorship for this race. Prizes will be awarded based on the amount of money raised for Duchenne muscular dystrophy. Raise at least $15 to cover the cost of your registration, t-shirt, and finisher's medal.
More information about this event can be found online at: http://www.active.com/event_detail.cfm?event_id=1571208
"Chasing a cure for DMD" is our Family 5k Fun Run on Saturday May 31st. Both runners and walkers are welcome to join us for this 3.1 mile race. A $50 Gift Certificate to Route 16 Running and Walking will be awarded to the top overall male and female runner and certificates will be awarded to the top 3 males and females winners in each age group category.
More information about this event can be found online at: http://www.active.com/event_detail.cfm?event_id=1576815
by Jennifer Buys on Wed, Apr 30, 2008 @ 12:47 PM
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"Who is going to beat me....I have sold to date 116 raffle tickets. Come on gang-- "Catch me if you can" hee hee
Janelle
by Jennifer Buys on Thu, Apr 10, 2008 @ 12:11 AM
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Please consider purchasing A $5 raffle ticket!
We have lots of great items for one lucky winner:
$100 Gift Card to Cutters Point Coffee
$100 Gift Certificate to Sensaria through Erika Lowery
A Gift Certificate for a pair of shoes from Route 16 Running and Walking
Nike Running Sunglassed from Suburban Opticians
$50 Gift Certificate for product or Service with Vicki at Hair Gallery
A Spa Manicure & Pedicure at Salon Vlasa
$100 Gift Certificate at Bloom
Drawing will take place May 10th. So buy your tickets now!
Email hamfordmd@comcast.net or contact a HAM team member directly!
by Jennifer Buys on Sat, Apr 05, 2008 @ 9:50 PM
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I just had to tell you all how excited I am with all of the progress going on with Micah. I know this is nothing that new but it is for our family. We recently went to spend Easter in Sun Valley at my dad's house and we got two lessons with an instructor with the (formerly known as)"Ski for All" and they had some great things. Micah even rode the chair lift quite a few times on the bi-ski. He loved it and wanted to do more and more. Our family loves to ski and Micah wants to be just like his big brother Brayden so this was a great step for us. This is the kind of things that money we raised pays for. So now lets raise somemore with PPMD to get a cure for this darn disease and Micah may be able to ski just like the rest of the family real soon! Thank you to everyone for helping make our dreams come true.
Janelle, Lance, Brayden and Micah
by Jennifer Buys on Tue, Mar 25, 2008 @ 3:04 PM
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Please stop in and say thanks to Miguel at Route 16 Running and Walking! Even though his new business doesn't offically open until tomorrow,Saturday March 15th, he is already a big supporter of Team HAM. Check out his website: http://www.route16runwalk.com or even better go check out the new store!
by Jennifer Buys on Fri, Mar 14, 2008 @ 8:18 PM
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Wow, I saw this page in its final stage and tears welled up in my eyes. Thank you so much my dear family and friends both old and new for thinking of our little boy. It really makes my heart feel good to know that we are loved by so many. I hope that it is as easy for you to look into the eyes of Micah and fall in love with him as it is for us. He is the joy of our life and we feel he deserves the very best out of life that we can give him. Thank you again for everything--we appreciate you more then you will ever know!
Janelle Hester
by Jennifer Buys on Mon, Mar 03, 2008 @ 11:45 PM
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First, we need to start by thanking PPMD and Seattle Marathon for allowing us to paricipate and to all our friends and family signing up for the team! Being able to fundraise for PPMD and do the Seattle Marathon is a first for both of these organizations, so let's be sure to make them proud to be working with our group!
Just email HAMforDMD@comcast.net to be added to our list!
by Jennifer Buys on Mon, Mar 03, 2008 @ 10:58 AM
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